• Health Care

    The Right Kind of Patient

    I’ve recently have found myself struggling with how I present myself as a patient. Are there right and wrong behaviors for the chronically ill? Do doctors treat patients differently based on how they interact in office visits? I’ve had a Fibromyalgia diagnosis for 11 years, and have been living with chronic migraine for at least that long. So I have been a patient for a long time and have met with maybe a dozen doctors. All of who I have tried to explain just how much these conditions affect me. Coming to a realization that maybe I’m going about it the wrong way was a little startling. Until recently I…

  • Activism,  Health Care

    September is Pain Awareness Month

    Pain, we are all familiar with it. A tooth ache, a sore throat, a broken bone. Pain regardless of its cause can keep us from spending time with our family, effect our work, and just down right make us miserable. When the pain becomes chronic, these issues are compounded by the pure exhaustion of living in pain. I have lived with pain my entire life. For the last 11 years I have lived with daily pain. Currently most days my pain is low, but there are some days where my pain effects every aspect of my life. My pain goal is to make those days few and far between. There…

  • Activism,  Health Care,  Review

    Book Review: Doing Harm by Maya Dusenberry

    On a day that I had time to kill I picked up Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenberry at my neighborhood library. It’s a pretty heady read for something I picked up on a whim, but it called to me from the New Release shelf. I was not even aware of Maya Dusenberry before I began to read this well researched and important book. Women’s health, gender bias, and misdiagnosis of serious health issues can be an emotionally charged topic including anger, sadness, and placing blame. So I wasn’t sure what to expect from a book…

  • Health Care

    MyChart: My Online Health Care Portal

    Last week I shared with you about my online community, this week I wanted to talk about another way I use technology, MyChart. MyChart is an online health care portal that allows you to access portions of your medical records, make appointments, and communicate with your doctors.  The tool is developed by  Epic, who’s About Us page states “Epic develops software to help people get well, help people stay well, and help future generations be healthier.”